Kids We Support

Month and Year of Birth: August 2013

Prathyush is a 5 years old boy from Palghat, Kerala. Parents observed abnormality in the child’s eyes since birth. He was diagnosed with bilateral RB. Parents left no stones unturned to treat the boy in various medical centers in Kerala and his left eye had been enucleated. In the process, they had exhausted all their resources and could not follow-up further for two years. Tumor in right eye progressed and with the support of Iksha his treatment continued. His right eye had been enucleated in March 2017. He is now doing good and on yearly follow-up.

Month and Year of Birth: May 2015

Parents noticed a white reflex in left eye when he was 9 months old. He was diagnosed with unilateral RB. He received 6 cycles of Chemo and left eye had been enucleated. COP was done. He has good right eye vision and is on 6 months follow up.

Month and Year of Birth: May 2018

Bhruvi (From Udipi) was 3 months old when they consulted an ophthalmologist due to the watery eye. She was diagnosed with unilateral RB (right eye). They were referred to Narayana Netralaya for further treatment. Her right eye had been enucleated post 3 cycles of Chemotherapy and Custome Made prosthetic eye had been implanted. She has good left eye vision. She is on 6 months followup now.

The mother had RB and lost one of her eyes when she was only a few months old. They were not aware that RB is genetic disorder until Ishwari(first child) was diagnosed with RB when she was 3 months old.

Ishwari

Month and Year of Birth: Sep 2015

Parents noticed a white reflex in her left eye when she was 3 months old. She was diagnosed with bilateral RB. She so far received 17 cycles of chemotherapy and laser. She has no left eye vision but has good chances of salvage of both eyes and vision of the right eye.

Harshal

Month and Year of Birth: August 2017

Mother did undergo necessary tests during second pregnancy and results were normal, but doctors suggested them to take the child for a checkup after birth. Harshal was a premature baby, so they took him for an eye checkup as soon as he recovered and gained little weight. He was diagnosed with bilateral RB. He received 11cycles of chemotherapy. He has no right eye vision but has good left eye vision.

Month and Year of Birth: January 2011

Parents noticed vision problems, when she was 5 and half years old. MRI was done, and she was diagnosed with unilateral (left eye) RB at an advanced stage. She initially received 9 cycles of chemotherapy. She responded well to the treatment and tumor subsided. She was cancer free for a year. Unfortunately, Cancer re-surfaced in April 2018. She again received 3 Cycles of chemo and continuing her treatment. Her left eye had been enucleated. She received 4 more cycles of chemotheraphy to treat tumor in the right eye and contunuing treatment.

Month and Year of Birth: August 2010

Amish was 3 years old when parents noticed common eye problems like watering and reddishness. He received treatment from a local doctor for 6 months. They consulted an ophthalmologist as there was no improvement in his condition. MRI was done, and he was diagnosed with bilateral RB. He received 6 cycles of Chemotherapy, Topotecan, and laser before tumor subsided. He was cancer free for about a year. Unfortunately, in the last few years, Cancer resurfaced a couple of times, but the fighting spirit of Amish and his parents has been commendable. He received Chemotherapy and Topotecan. Tumor subsided and he is now on 3 months followup. 

Month and Year of Birth: June 2014

Parents noticed squint in his right eye when he was 2 year and 6 months old but did not consult a doctor as the father has a Squint. Soon they noticed a white reflex in the same eye. They consulted an Ophthalmologist immediately and he was diagnosed with Bilateral RB. He received 6 chemos and laser. He has limited in left eye but has good vision in right eye. He is now on 3 months followup.