Kids We Support
Sarthak Chormale
Sarthak Chormale is a 3 years 5 months old boy from Pune who is receiving treatment for RB at HVD. In May 2018, his parents noticed a white reflex in his right eye and consulted an eye specialist who suspected it as RB and referred them to HV Desai. MRI and scanning were done, and he was diagnosed with unilateral RB. The priority for the doctors is life, organ and then sight. They started off with 5 cycles of Chemotherapy to see if cancer can be neutralized. That being unsuccessful, they had to enucleate his right eye. He further received 2 cycles of Chemotherapy and had a hard time during the treatment as he had to go through some side effects and was admitted in hospital for longer durations. However, his condition is stable now and, is closely monitored once in 6 weeks.
Zoha
Month and Year of Birth: May 2014
Zoha is from Maharashtra. She had squint from birth, but they did not consult the doctors due to ignorance. In June 2018, they consulted a doctor in Aurangabad after noticing vision problems. The doctor referred them to CFS for further diagnosis and treatment. At CFS, MRI and Scan were done. She was diagnosed with unilateral RB. So far, she received 6 cycles of Chemotherapy, laser and tumor subsided. She is now on 3 months followup.
Daxit
Month and Year of Birth: January 2015
White reflex in both the eyes of the child was noticed by parents in a picture they took when he was 4 months old. They consulted a government doctor in Ahmedabad and a doctor in Rajkot who referred them to CFS. MRI and Scan were done, and he was diagnosed with bilateral RB. He received 6 cycles of Chemotherapy and laser. Tumors in both eyes subsided and he is now on 4 months followup. He has a moderate vision in the eyes and attending school.
Parveez
Month and Year of Birth: March 2016
Parveez is a 2 year 10 months old boy from West Bengal. His parents noticed a white reflex in his right eye when he was 2 years old. MRI and Scan were done on consultation of an Ophthalmologist. He was diagnosed with unilateral RB. He received 6 cycles of chemotherapy and Laser. His right has been enucleated in March 2019.
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Dharam veer
Month and Year of Birth: April 2014
Dharam veer is 4 years 9 months old from Gujarat. His parents noticed that the child has some vision problems when he was 2 years old. They immediately consulted a local doctor who referred them to an ophthalmologist in Rajkot. After the initial diagnosis, the child had been referred to Centre for Sight further diagnosis. MRI was done and he was diagnosed with bilateral RB. His right eye had been enucleated post 6 cycles of chemotherapy and laser. He was tumor free for 8 months. Unfortunately, small grains of tumor re-surfaced and he then received 3 more cycles of chemotherapy and Topotecan. He has good left eye vision and recovering well.
Ansha
Month and Year of Birth: March 2017
Ansha is a 10 months old girl from Uttara Pradesh. In April 2018, they consulted a local doctor due to reddishness in the left eye. The doctor referred them to CFS post basic eye checkup suspecting it as RB. EUA and MRI were done. She was diagnosed with unilateral RB. She received 6 cycles of Chemotherapy and Brachytherapy. She responded well to the treatment with high chances of savage of vision in both the eyes.
Bhumika Saini
Month and Year of Birth: June 2013
Her parents noticed a white spot in left eye when she was 2 years old and consulted an eye specialist. She was diagnosed with bilateral RB. Her left eye had enucleated post 12 cycles of Chemotherapy. Laser and Topotecan were given for right eye and tumor subsided. Her condition was stable for a few months but unfortunately, tumor resurfaced. She then received 6 cycles of chemo and would need 3 more.
Past two years were more difficult times for the family, but they never lost hope. We wish for her speedy recovery.
Arka
Month and Year of Birth: May 2013
Arka was about 4 years old when parents noticed a white reflex in her left eye. The doctor they consulted referred them to CFS for detailed examination and treatment. She was diagnosed with unilateral RB. She received 6 cycles of chemotherapy and laser. She has good right eye vision and blurred or limited vision in the left eye. She is now 3 months follow up.
Koushik
Month and Year of Birth: April 2016
His parents noticed a white reflex in his left eye when he was 2 years old. EUA and MRI were done on consultation of an ophthalmologist. He was diagnosed with bilateral RB with type "E" in both the eyes. So far, he received 6 cycles of Chemotherapy and laser. He is closely monitored every month for any reoccurrence or changes in the tumor.
Iksha wishes for his speedy recovery.
Keertisha
Month and Year of Birth: August 2017
Her parents noticed white reflex in both the eyes when she was 4 months old. In February 2018, they consulted an ophthalmologist in Kanchipuram. She was diagnosed with Bilateral RB. She received treatment at Narayana Netralaya and Mazumdar Shaw. She received 6 cycles of Chemotherapy and Laser. She responded well to the treatment and tumors subsided. She is now on 3 months follow-up and has moderately low vision in both the eyes.
Piu Hazra
Month and Year of Birth: February 2013
Piu Hazra is a 5 year and 10 months old Girl. Parents noticed a white reflex in her right eye when she was 4 years and 6 months old. They consulted an ophthalmologist and she was diagnosed with unilateral RB. She received 6 cycles of Chemotherapy and responded well to the treatment. She is now monitored closely for every two months and recovering well. She has good left eye vision and limited right eye vision.
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Nithya
Month and Year of Birth: November 2016
She was picked up with white reflex at a general camp held in Hosur. Detailed examination and MRI were done, and she was diagnosed with RB. She received 6 cycles of chemo and her left eye had been enucleated. A Custom Made Prosthetic eye had been implanted to ensure social acceptance. She has good right eye vision and recovering well.
Basavanna
Month and Year of Birth: February 2012
A teacher at his school noticed that he had vision problems and suggested parents, to take him for an eye checkup. He was diagnosed with bilateral RB, type E in both eyes. His left eye had been enucleated post 6 cycles of chemotherapy and COP was done.
Chandan
Month and Year of Birth: March 2017
Chandan from Uttara Kannada is 2 Years 8 Months old boy. His parents noticed a white reflex in the right eye in April 2018. MRI was done, and he was diagnosed with bilateral RB. His right eye had been enucleated immediately due to advanced Tumor and biopsy showed no extraocular spread. He is receiving treatment for the left eye with high chances of salvage of eye and vision.
Chetan Gonda
Month and Year of Birth: January 2016
Chetan is 2 years and 6 months boy from Bhatkal. He had difficulty in judging the position of things when he was around 2 months old and soon parents noticed a white reflex in his left eye. He was diagnosed with bilateral RB. So far, He received 6 cycles of chemo and his left eye had been enucleated. He would need 3 more cycles of chemo to treat the tumor in the right eye.
