Kids We Support

Month and Year of Birth: June 2015

Jayaprakash was only 4 months old when he was referred to Narayana Netralaya form Tamilnadu, he was diagnosed with bilateral retinoblastoma (RE group A, LE group D). His parents are financially not strong, His father Mr.Saravanna is a daily wage worker and mother Mrs. Anitha is a homemaker.  He was referred to Iksha on 30/10/2015.

He has received 6 cycles of chemo and focal laser every 3 weeks for 8 months. He has sight in both eyes and is one year old. His last examination shows no tumor activity, but he will come to the hospital regularly and he will be regularly monitored to ensure there is no relapse of the tumor.

Month and Year of Birth: July 2014 

Ujwala came to Narayana Nethralaya as a 5-month-old child in 2014. She had genetic screening done as she had other genetic related ailments. During this genetic examination, she was found to have retinoblastoma and treated for the same. She is one of the few cases where the cancer was detected and treated before it manifested into a serious form.

Month and Year of Birth: December 2010

Nivedashree was referred to Narayana Netralaya on January 2016 and she was examined under pre-anesthesia and was diagnosed with an advanced stage of Retinoblastoma. Her Father Mr.Madesh is a mason with a construction agency in Bangalore and her mother Mrs. Kamachi is a house wife. Nivedashree also has a younger sister who is 3 years old and she was also screened of retinoblastoma and she is normal.

Nivedashree has completed her 6 rounds of chemo, 12 sessions of laser therapy, her last checkup shows regressed tumor activity and as she has an advanced stage of the tumor, Enucleation of an eye was considered as a possible action. Fortunately after her MRI and Examination under anesthesia Nivedashree’s tumor had regressed and the doctors are trying to save both the eyes as her vision is good. Nivedashree is currently undergoing Brachytherapy at Center for Sight, Hyderabad and her progress is being monitored.

Month and Year of Birth: January 2012 

Uttam was with diagnosed bilateral retinoblastoma at the age of 2 with RE group D and LE group B. His father Mr. Ravi works at a welding shop and mother Mrs. Ashwini is a housewife. They hail from Dharamshala, Karnataka.

He has completed his 6 cycles of chemo and focal laser every 3-4 weeks. His right eye was enucleated as the cancer was advanced. He is regularly examined under general anesthesia and recently got his new Custom Made Prosthetic eye implanted. His reports are fine and the tumor activity is subsided.

Month and Year of Birth: July 2015

Fathima was 7 months old and was referred to Narayana Netralaya from Father Muller hospital in Mangalore. She hails from Karagod and has been diagnosed with bilateral Retinoblastoma. Her father Mr. Abdul Hammed has lost his vision two years ago, earlier he was working in a hotel and her mother Mrs. Ayesha is a housewife. They have no resources to treat Fathima and Iksha was approached seeking support.

Fathima had to undergo enucleation as the tumor is already highly spread. But after 2 cycles of chemo, her parents are not responding and have discontinued the treatment.

We have been trying to contact the parents to educate them on the importance of coming back for treatment and hope to be able to reach them soon.

Month and Year of Birth: January 2014

Shreyas was born 3rd Jan 2014 and was diagnosed with retinoblastoma in November and his left eye has been enucleated. His father is a driver of a JCB and his mother is a home maker. They hail from Pavagada in Karnataka and need financial assistance to ensure that the treatment of Shreyas can happen and his life can be saved. Shreyas is the first child his parents have and blood samples have been taken to do the necessary tests to try and identify a similar problem if and when Shreyas has a sibling. On 10th December, he had a checkup at the hospital and there doesn't seem to be any trace of cancer. He, however, needs to come in once in 3 months for a survey, to ensure that the cancer is completely removed and that there is no relapse.

Month and Year of Birth: December 2013

Manikya Shetty was born in December 2013 and was presented to us via Narayana Nethralaya early November 2014. The parents had consulted a hospital in Udupi, where they hail from and was he was diagnosed with bilateral retinoblastoma and they were asked to go to Bangalore for treatment.

His parents are financially not well off, father Mr. Ashok Shetty is working as a sports instructor in confident group of companies, Kolar and his mother Mrs. Veena Shetty is a housewife.

The child initially required an MRI and examination under general anesthesia before deciding what treatment was to be given.

His left eye had to be enucleated and a false eye put in. He has had several rounds of Chemotherapy and is reacting well. The child would have to come in for routine checkups every 3 weeks for a few visits, before which we can take a call on how he is doing.

He has just started to walk and was busy exploring the halls of Narayana Nethralaya during his visit early Feb.